….and so it goes – on and on and….

The pernicious anaemia (treated for now) doesn’t seem to be the end of my medical drama.  It turns out there are some complications relating to why I’m experiencing L’hermittes sign that the doctors are still a bit clueless about.  Personally, I reckon it’s cervical spondolysis now.  However, without having a degree in medicine it seems my extensive research into what could possibly be wrong with me (apart from the obvious stress of being in constant pain and having no answers as to why) is wasted within the surgery walls.  Where only the the ‘qualified’ Google searches leading to Wikipedia’s (accurate by the way) suggestions count!

I honestly believe doctors really ought to listen more to the person actually experiencing the symptoms!  For instance I have been told from Day One that the cracking in my neck is insignificant and down to stress (we’re all bloody stressed – cop-out excuse!) so even I have ignored it, leaving it out of my research into the list of symptoms I have.  As it’s been getting worse however, and following my last appointment where the doc said he was absolutely sure it was nothing to do with my ‘condition’ whatever the hell it is, I decided to ignore ‘he whose words we all seem to take as gospel’ and really look at other possibilities.  I literally typed into Google (<3 ) the words ‘L’hermittes’ and ‘cracking neck’ (cracking neck?? Good thing I didn’t have to type in ‘cracking legs’ or similar – would have got entirely different search results!).  Anywho, I digress.  The first result that came up related to Cervical Spondolysis and my symptoms fit exactly!  Great news!! THIS is fixable!!  Well not entirely curable BUT, you can have surgery to ease the pain and then just maintain a series of exercises at home to maintain flexibility and range of movement.  Somebody please tell me that’s what I have already!  It’s better than thinking that the whole time the docs are ‘investigating’ my spinal cord is being damaged beyond repair….am I right or am I right?  Jeez!

Anyway, negative rant out of the way I am actually REALLY pleased that the Pernicious Anaemia is under control and my energy levels are UP!  It’s fantastic.  For years I’ve been exhausted.  Certainly this past year.  Giving everything I have to the last drop at work, plus the additional tiresome behaviour of pretending I’m ok.  Knackering in itself!  Then there’s the late nights.  Basically coming home and dropping off within half an hour and STILL finding it hard to get out of bed in the morning to do it all over again!  Then finally having to find energy to give my kids on the weekends.

I even had a reputation for falling asleep ten minutes into a movie or having half a glass of wine and passing out.

Turns out I wasn’t drunk OR allergic to alcohol.  Phew!   These days I’ll happily watch TWO – that’s right, TWO films, in a row!  WITH wine!  Amazing!  I’m also much happier in general.  This is huge!  Patience and overall laid-back-ness are  also on the up.  This is the good, no GREAT, news.

 

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One thought on “….and so it goes – on and on and….”

  1. greetings, superior blog page, and an excellent understand! definitely one for my favorites.

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